Today I had an appointment with my endocrinologist and her assistant to do the regular check of the functioning of my thyroid gland.
I am being treated on Hashimoto’s already 2 years. So far, my symptoms only strengthened while my thyroid medication dose only increases. Overall, I feel so bad that I cannot function normally. When I look at the symptoms of Hashimoto’s, I have most of them and more!
As you might have read in my previous posts
- I have been diagnosed with Hashimoto’s and I’m using synthetic levothyroxine. For the first 6 months I used Euthyrox and for the last 1.5 years I use Thyrax.
- 1.5 years after the diagnosis with Hashimoto’s I was diagnosed with iron deficiency anemia and celiac disease (3rd degree Marsh classification).
- Despite of supplementing the thyroid hormone and being on a strict gluten free diet –my multiple symptoms do not vanish.
- I am supplementing vitamin D.
- I am more sensitive to dairy products now than I was 6 months ago.
During my last phone consultation with the endocrinologist’s assistant, I have suggested a face to face meeting with the three of us. There was no problem with it. I just had to wait for it a couple of weeks more than usual.
Usually, the blood screening is performed once in 6-7 weeks. A typical control would include testing the TSH and T4 hormones level to check if the dose of levothyroxine I am taking is still accurate. Occasionally, the level of vitamin D in my blood is screened as well.
The main reasons why I wanted to see endocrinologist again
- After 2 years I still don’t feel well
- Despite being on a strict gluten free diet for 6 months the absorption of levothyroxine wasn’t improving
- To ask many questions regarding Hashimoto’s and inflammation of the thyroid gland
- To consider other causes of my symptoms
- To ask for a lactose free levothyroxine supplement
Discussion points from the meeting
- My thyroid hormones values are within the norm – I’m used to hear it. But it means nothing to me when I don’t feel well.
- The TSH value dropped from my usual level between 3 and 1 to 0.35. Some people feel better with such a low TSH level but I am not one of them. This is a possible reason of my migraine last week! What to do: decrease the dose of levothyroxine. (HURAAAYYY)
- Perhaps my intestines did heal a bit and I do absorb levothyroxine better which led to such low TSH level 0.35. (Jeeeeeyy)
- There is a lactose free synthetic levothyroxine and it is called Eltroxin. Strange is that according to all websites it does contain lactose. (Mental note: Double ask in pharmacy.)
- My level of vitamin B12 is very low. Some people with low vitamin B12 level are unable to absorb it. Decision: blood screening for Intrinsic factor antibodies and parietal cells. (I am feeling taken seriously)
- Some symptoms and my medical patterns could be caused by adrenal glands. Decision: we are going to test cortisol and adrenal cortex antibodies. (Further research! Yes, thank you)
- Since I used to have iron deficiency anemia – we are going to check my iron level again (my cast iron pan should help with this issue here :D)
- Due to the overall complaints – the vitamins B and hemoglobin will be tested. (Yes, thank you)
Overall, I think it was a good meeting. I am glad I have asked for the face to face consultation. Each issue and worry was discussed and taken seriously. I wouldn’t mind a bit more engagement from the doctor’s side but I am not going to complain. This was already more than I am used to. She underlined a couple of times that she rather waits with further investigation until the intestines are healed. Otherwise she cannot be sure, what is the real cause of my symptoms. If I think of it from a research point of view, she has a good point there. So many triggers are involved that it is not easy to draw a conclusions. On the other hand, I am a patient and I believe that there is always space for a deeper investigation.
Now I am anxious. I hope the tests will eliminate the possibility of problems with adrenals so I can blame my not yet fully healed intestine for everything.